DNA BioBank for DSR Community?

We are currently looking at the feasibility of establishing a Donor Sibling
Registry DNA biobank of individuals that were conceived using sperm (and egg)
donation. (Possibly parents and donors as well). The biobank construction will
be created together with scientists from Whitehead Institute for Biomedical
Research (MIT) and will be used to study the genetics of a variety of traits and
medical conditions in the DSR community.

The biobank will be completely anonymous and the DNA testing would be free of
charge. The samples will be collected using cheek swabs, a non-invasive and
painless methodology. In addition, each participant (or parent) would be asked
to fill a 30-45min questionnaire to describe his or her medical history. One
immediate benefit to the participants would be the acquisition of genetic
information that can be used for genealogy research. We hope also to validate
donor-child connections and also to establish new ones between different groups
on the DSR. We might also be able to offer some compensation for the
participants.

We would like to know if you would be willing to participate in such a biobank
and if you have any specific concerns or information that you would need before
you might be willing to submit your (or your child’s) DNA.

I have set up a 3 question survey (will take less than a minute) so that we can
hear why you would, or would not be interested. It would be great if you could
click on this link, and let us know your thoughts on DNA testing:

http://www.surveymonkey.com/s/2KQX2PB

Thanks so much!

Wendy

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