I received this today from a former egg donor. If you used the Cooper Center for IVF between 1997-1999, or know anyone else that did, please see the postings for this clinic on the DSR. Contact Wendy if you need more information.
I have been a member of the registry since 2004. I donated eggs in 97, 98, and 99.
I am concerned about the children that may have resulted from those cycles. I have been diagnosed with Autosomal dominant polycystic kidney disease (ADPKD). I have 4 children, 2 have the disease. One does not and the youngest has not yet been tested. He is 15 and conceived from the cycle in 99. I kept 3 eggs and donated 20.
I contacted the clinic immediately after I found out. They completely accepted the information but did not give me any real Indication that they would relay the information.
I lost my mom in 2005 to aneurysm as a result of the disease.
My niece had aneurysm surgery 4 years ago. She was the youngest diagnosed with serious complications.
My sisters are both in renal failure waiting for transplants.